Technology assessment and resource allocation for predictive genetic testing: A study of the perspectives of Canadian genetic health care providers
نویسندگان
چکیده
BACKGROUND With a growing number of genetic tests becoming available to the health and consumer markets, genetic health care providers in Canada are faced with the challenge of developing robust decision rules or guidelines to allocate a finite number of public resources. The objective of this study was to gain Canadian genetic health providers' perspectives on factors and criteria that influence and shape resource allocation decisions for publically funded predictive genetic testing in Canada. METHODS The authors conducted semi-structured interviews with 16 senior lab directors and clinicians at publically funded Canadian predictive genetic testing facilities. Participants were drawn from British Columbia, Alberta, Manitoba, Ontario, Quebec and Nova Scotia. Given the community sampled was identified as being relatively small and challenging to access, purposive sampling coupled with snowball sampling methodologies were utilized. RESULTS Surveyed lab directors and clinicians indicated that predictive genetic tests were funded provincially by one of two predominant funding models, but they themselves played a significant role in how these funds were allocated for specific tests and services. They also rated and identified several factors that influenced allocation decisions and patients' decisions regarding testing. Lastly, participants provided recommendations regarding changes to existing allocation models and showed support for a national evaluation process for predictive testing. CONCLUSION Our findings suggest that largely local and relatively ad hoc decision making processes are being made in relation to resource allocations for predictive genetic tests and that a more coordinated and, potentially, national approach to allocation decisions in this context may be appropriate.
منابع مشابه
Author's response to reviews Title: Technology assessment and resource allocation for predictive genetic testing: A study of the perspectives of Canadian genetic health care providers Authors:
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متن کاملAuthor's response to reviews Title: Technology assessment and resource allocation for predictive genetic testing: A pilot study of the perspectives of Canadian genetic health care providers Authors:
1. It would be useful to see the N of participants in the methods or results of the abstract. • The N of participants has been included in the methods section of the abstract. 2. The results section needs to be a little more detailed, and include the main findings from the study, or highlights of the main findings. Ideally, the results should directly inform the conclusions. • The results secti...
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ورودعنوان ژورنال:
- BMC Medical Ethics
دوره 10 شماره
صفحات -
تاریخ انتشار 2009